Midterm Report: Chemo Trifecta

Ten weeks have passed since my Lymphoma adventure started. I continue to do very well, and had a great week on the journey I’ve been taking.

I finished round 3 of chemo last friday, and the side effects were, again, minimal. The most significant has been the fatigue, which an afternoon catnap and a tall half-caf from Starbucks pretty much takes care of. My biggest worry, like last time, was reacting to the Neulasta shot that I get to reduce the risk of infection while my white counts are low, a condition called neutropenia. People often experience bone pain, which I did pretty severely after the first round, but much less so after the second one. This time, it was about the same as round 2, maybe even slightly less so, and was again manageable with a little Tylenol.

I was able to connect in person with some friends for lunch and coffee—nice to see you Linda, Gloria, Joni, Ted, and Bill—some others for dinner and Scrabble—good game Jim and Kristy (btw, check out their sites if you need a massage or copy editing, respectively)—and also meet face-to-face for the first time with Zeth, my new Cancer Pal and colleague at NYU SCPS CADA. (Seriously, everything at NYU has to have at least three words in its name and an acronym.)

On the career front, I continue to stay busy, which is helpful to keep me from going stir crazy as treatment becomes more and more routine. I’m focusing on my online teaching, which lets me work from home and have a flexible schedule. That’s a huge plus if I have appointments or just want to take a break and rest a bit. My new course, Design For Coders, for new client LearnToProgram.tv, is open in early access for beta testing, and I self-published another, Interactive PDFs with Adobe InDesign: No-Code Digital (click here to get it for free through the end of the month). I was also excited to be honored with a 2013 American Graphic Design Award!

It’s a little hard to believe that I’m over the halfway mark, but I’m looking forward to continuing full speed ahead through the second half, and having a strong finish in November. Thanks to everyone for your continued love, support, and positive thoughts/prayers/vibes/energy. Lotsa love to you all!

Oh, and PS: I ordered the 32GB iPhone 5s in Space Gray. 🙂

From the Forgotten Comes Dinner

As far as groceries go, I am the king of overbuying. I either forget that I already have two jars of dried rosemary, or I get caught up in summer abundance, and have more produce than I can eat before it goes bad. After my last green market haul, a head of broccoli and an eggplant ended up hidden away in my fridge until days later, when I was looking for something else and realized it was use it or loose it time for both. I’m always game for a challenge, so instead of chucking them, I cooked up a surprisingly tasty quick meatless dinner.

What did we do before every recipe, tip, trick, and kitchen disaster fix was online? Not sure how well broccoli and eggplant would compliment each other, I did a search and found plenty of promising results. Next, I wondered if the fresh dill I had—also on death watch—would be a good fit. Google said, “yes.”

I was pretty hungry, so stir-fry seemed to be the fastest and easiest way to go. My usual base is garlic and onion sautéed in a little olive oil, some stock, and salt, pepper and seasonings to taste. I sometimes find though, that my off-the-cuff dishes come out bland. The week before, I made a delicious chicken and broccoli dish that called for thinly sliced lemon, so I decided to add that into the mix.

With my basic plan in place, I got to work on my culinary experiment. As I cooked, I thought the flavors in this dish would need something else to pull them all together, so I added in some ground coriander. I’ve been eating less meat, but making sure to include more plant-based protein to compensate, so I tossed in a can of black beans, which made the stir-fry more hearty, and also thickened it. Side note: I thought I would need a little flour to do this, but the result was too pasty when I added it, and I ended up adding more stock as a fix.

In under an hour, I had a surprisingly good main dish, which served over quinoa and with a side salad, made a very satisfying dinner. Even better, the leftovers gave me two additional meals and a quart for the freezer, where I’ve been storing extra food in case I don’t feel up to cooking, or am hungry and want to eat quickly.

I was pleased for turning veggies that would have otherwise been compost, into several nutritious meals, while at the same time exercising my brain a little, and tapping into my creativity. Not a bad job, if I do say so, myself.

 

Broccoli and Eggplant Stir-Fry with Black Beans and Dill

Prep Time: 15 mins, Cook Time: 25 mins. Yield: about 6 cups.

  • 1 tbsp olive oil
  • 1 large clove garlic, finely chopped
  • 1 small onion, chopped
  • 2 cups diced eggplant
  • 2 cups chopped broccoli, stems peeled if desired
  • 1/2 small to medium lemon, halved lengthwise and thinly sliced crosswise, seeds removed
  • 1 to 1 1/2 cups vegetable stock
  • 1 15 oz. can black beans, rinsed and drained
  • 1 tbsp finely chopped fresh dill
  • 1 tsp dried ground coriander
  • Salt and pepper
  1. Heat the olive oil in a skillet over medium high heat. Add garlic and onion; sauté until golden and tender, about 5 minutes.
  2. Add eggplant and broccoli. Sprinkle with salt; sauté until broccoli is bright green and eggplant starts to soften, about 3 minutes.
  3. Add the lemon and sauté about 2 minutes.
  4. Add about 1/2 cup stock; cook, stirring occasionally, until broccoli is tender, eggplant is soft, and lemon is translucent, about 8 minutes. Add more stock a splash at a time, as needed.
  5. Add beans, dill, coriander, salt and pepper to taste, and about 1/4 cup stock. Cook, stirring occasionally, until beans are heated through, adding more stock as needed, until mixture reaches desired consistency.
  6. Adjust seasonings if desired and remove from heat.
  7. Serve over quinoa, rice, or pasta.

 

The People We Meet

This French short beautifully captures how we can affect each other’s life, and the music is as charming as the illustration and animation. I love that it uses balloons as a symbol of friendship, love, and caring, which I realized is a nice connection to the Light The Night Walk, which also uses them. Just a reminder, I’m walking on Wednesday, September 25th, and you can help or join me.

If you can’t see the video here, just refresh your browser.

FLOATING IN MY MIND from GOBELINS pro on Vimeo.

 

Cancer Pals

Hollis, my friend, colleague, and fellow cancer survivor (yes, I unapologetically will take the liberty of making that prediction) wrote this in a message to me, after learning the news of my diagnosis:

Something that will surprise you (as it did me) is that you may make a circle of cancer pals.”

One of those cancer pals, is Zeth. My friend, CM, who is also a survivor, knows his sister-in-law, and realized that he and I both teach in the same department at NYU, were both diagnosed with the same type of lymphoma, and both have blogs about it. What are the odds?! Zeth included me in a post in his blog, and so I’m returning the favor, with a thanks to him and all my pals, cancer and otherwise.

Second Round Rundown

Joe in Cap and Black Tee

My friend, Carmen, snapped this pic of me, today.

I’m happy to report that I’m two for two! My second round of chemo went very well, with minimal side effects.

Dr. R. increased the dosage this cycle because I did so well after the first one, but I felt no differently for the most part, other than being slightly more tired. This gave me license to indulge in one of my favorite guilty pleasures: the afternoon nap.

I’m also happy to report that my reaction to the Neulasta shot was much less severe. This was expected, because I had less disease. This time, on a scale of one to ten, the pain in the bones of my lower back and legs only got up to a strong one at the most, and two Extra Strength Tylenols once a day took care of it. Last time, it topped off at a strong six, and I took the Tylenol every six hours. That time, the medication wore off at the height of the pain, after only about three and a half hours, leaving me to deal with it until I could take another dose. I also tried a preventative remedy that my Mom passed on—many of you know that she’s also an RN—which seems to have worked, and was recommended through an Oncologist in her medical community: one Claritin the evening before, of, and after the shot. I’m a good patient (if I do say so myself) so I first made sure to clear this with Moira, my fantastic RN/Hematology Nurse Practitioner, before taking anything that hadn’t been prescribed by their office.

The only real issue has been low white blood cell counts: 1500 total with 800 neutrophils (the NIH defines normal as 4,500 to 10,000). As a result, I was put on a five-day course of prophylactic antibiotics. The low counts mean that I feel the fatigue more, too, so I decided not to fight the masses of travelers this Labor Day weekend, and instead have been laying low at home in Brooklyn. These results were expected; in fact, if my counts were good like last time (11,000), Dr. R. would have increased the chemo again for round three.

One thing is certain: my appetite hasn’t been affected. I’m eating like a horse. I met friends for a great brunch at Alchemy, yesterday, and lunch at ‘Snice, today. Before lunch, I stopped at the farmers market on 5th Ave and 4th St, and made a nice haul of fresh produce. Wait, did I really spend $10 on arugula?! No matter, I’ve paid that for a cocktail, and this ten spot went towards part of two bags of local, pesticide-free fruits and veggies to feast on this week. On a related note, I’ve been cooking and eating at home a lot more, which has been very therapeutic and fun. Except for doing the dishes. I don’t ever find washing dishes fun. Especially since, like most NYC apartment dwellers, I don’t have a dishwasher.

The last eight weeks have flown by, but the dust is settling a bit and I’m getting back into a routine. This was my first full week of work since being diagnosed, and it was very productive. I published a new online course of my own at Udemy.com, Interactive PDFs with Adobe InDesign: No-Code Digital, and another, Design for Coders, which I did for my new client learntoprogram.tv, was opened for early access and will go live in about two weeks.

At one-third of the way done, I’m feeling great and hoping the pattern continues for the next four treatments. Thanks for keeping those prayers, thoughts, vibes and all forms of positive energy coming; clearly they’re working!

Lotsa love,

Joseph/Joe

PS: There’s still plenty of time to support my Light The Night Walk on September 25!

The Harrison Situation: Telling the Kids

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My family gathered this past weekend, as is our tradition each August, to celebrate my Grandma’s birthday. (She turned 92; happy birthday, “Bs!”) My cousin Charlie and his wife Amy were there from Ohio with their two boys, Harrison, age 7, and Grant, age 4. I see the boys a few times a year, so they’re pretty comfortable around me. This time, though, Harrison had a reaction that I didn’t know about until after the fact, and which shows how important it is to be honest with kids about cancer and other illnesses.

Thinking back, I noticed that Harrison was a little more timid around me than he has been during past visits. He and Grant arrived at our Grandma’s house full of energy, and I kind of realized that when Harrison came through the door and noticed me, shortly after saying his hellos to everyone in the house, he ran outside to explore and play with cousins Ayden, 7, and Arie, almost 3.

‘Can I catch it?’ This seemed so obvious once I heard it. When kids hear that someone’s sick and has to take medicine, we tell them, ‘Don’t get too close, you don’t want to get sick, too!'”

A little later, Charlie said to me, “I think Harrison was a little freaked out when he saw you without hair.” Now it started to click. “We’ll have to have a talk with him later, and let him know what’s going on.” I told him that I’m very open about discussing my diagnosis, and would be happy to talk to Harrison if he and Amy wanted. I can’t remember if Harrison and I said goodbye when they left for the evening to have dinner, but I do remember that I didn’t want to push it, and so I gave him some space.

When they came back the next day, Amy told me about the conversation that she and Charlie had with Harrison before bed the previous night, and it sounded wonderful. They told him that I had cancer, that some of the medicine I’m taking made me loose my hair, and then asked him if he had any questions. Two of them blew me away, but for different reasons. The first was, “Can I catch it?” This seemed so obvious once I heard it. When kids hear that someone’s sick and has to take medicine, we tell them, “Don’t get too close, you don’t want to get sick, too!” The next question was, “Can I give him a hug?” That one made my heart melt. It was so touching, because I think he was afraid that he might hurt me, and wanted to make sure that it was ok, first.

I was curious, so I asked Neil, who is Charlie’s younger brother, and Neil’s wife, Tianna, if they had spoken to their kids, Ayden and Arie, and if the kids had asked any questions about me. Neil replied, “Arie is too young to really understand what’s going on. Ayden does understand that you’re not feeling well, but knows that the doctors are taking care of you. He’s not freaked out. To him you’re the same old Joe.”

As adults, we sometimes forget how black and white the world is through a child’s eyes, so it’s important to give them the facts that we feel are appropriate, and the opportunity to let them ask questions that we answer honestly, keeping in mind that sometimes the best answer is, “I don’t know.” Kudos to Charlie, Amy, Neil and Tianna on their parenting skills, and thanks to Harrison, Grant, Ayden, and Arie for helping us all remember what it’s like to just be cousins, and have fun at Grandma’s. Spending time with my family has been great medicine, and I hope that for them, seeing me in good spirits, staying focused and positive, and being open about my diagnosis, is good medicine for them, too. After all, Ayden’s right. I’m the same old Joe I was before lymphoma, just with a few extra cells, and a lot less hair.

Over A Thousand Dollars in Three Days

Origami heart made from paper money

Click photo for origami instructions.

In just three short days, I’ve already met and passed my personal fundraising goal for The Leukemia and Lymphoma Society‘s Light The Night Walk! Thanks to the generosity of my friends and family, over a thousand dollars will go to leukemia and lymphoma research, and there’s still plenty of opportunities for you to help and participate.

Since the event is over a month away, I’ve set the bar higher, and set a new personal fundraising goal of $2000. If you’d like to donate, please click to visit my personal fundraising page, and if you’d like to walk with me on September 25 in NYC, click to join Team Joe C.

Every amount, no matter how small, will help fund life-saving research and make a difference. Only have a dollar to give? No problem! Better yet, ask four friends each to match you, and now you’ve got five dollars. What, you say you can each afford to give two dollars? Awesome, now you’ve raised ten dollars that will help fund research for treatments that will wipe out cancer!

For everyone who has donated so far, again, thank you so much, and thanks in advance to everyone who will be giving. One last thing, please be sure to ask your employer if they’ll match your donation and make it count twice!