Many Big Thanks for Helping Me Light The Night in NYC

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On a beautiful evening this past Wednesday, I took part in my first Light The Night Walk, with my teammate Sue and I raising over $5000 together for the Leukemia & Lymphoma Society!

Thanks to the generosity of our families and friends, we’ll help fund therapies and treatment advances for blood cancer patients. Whether you gave $5, $50, or $350, know that you’re saving the lives of people like me who have these diseases.

The walk kicked off at Pier 57, now renamed SuperPier. (On a side note, as a publication designer, I thought it was cool when I read in The New York Times that the name came from a 1952 Popular Mechanics article.)  It took awhile for everyone to get outside, but once we did, the walk along Hudson River Park was a very nice way to spend the evening. Sue and I were members of the Bright Lights Club, having raised over $1000 each. Everyone who raised over $100 was a Champion for Cures, and carried a balloon, which had a light inside it, in one of three colors: white for survivors and patients, red for supporters, and gold in memory of loved ones lost.

The event was very inspirational, and I’m proud that my team surpassed its fundraising goal. If you wanted to give, but didn’t, there’s still plenty of time. Donations will be accepted through the end of the year, and can be made online through my fundraising page, or if you’d prefer to give by check, please click here to email me for the address. In the meantime, I’m sending everyone a big hug of thanks for all your love, support, and generosity!

Countdown to Light The Night

Colorful balloons

Light The Night Walk is this Wednesday, and thanks to many generous donations, I’ve raised over $3100, so far! There’s still time to make a donation, or join Team Joe_C at SuperPier in NYC. I’ve set my team goal at $5000, and we’re only $1,100 away from reaching it. The money we’re raising will fund therapies and treatment advances for blood cancer patients. Your generosity will save lives.

Balloons are the symbol for light the night. Read how they also played a part in Live A Big Life Celebration Day, a powerful tribute to my friend Jerry’s late nephew, Cam.

Image: Graphicstock.com

Midterm Report: Chemo Trifecta

Ten weeks have passed since my Lymphoma adventure started. I continue to do very well, and had a great week on the journey I’ve been taking.

I finished round 3 of chemo last friday, and the side effects were, again, minimal. The most significant has been the fatigue, which an afternoon catnap and a tall half-caf from Starbucks pretty much takes care of. My biggest worry, like last time, was reacting to the Neulasta shot that I get to reduce the risk of infection while my white counts are low, a condition called neutropenia. People often experience bone pain, which I did pretty severely after the first round, but much less so after the second one. This time, it was about the same as round 2, maybe even slightly less so, and was again manageable with a little Tylenol.

I was able to connect in person with some friends for lunch and coffee—nice to see you Linda, Gloria, Joni, Ted, and Bill—some others for dinner and Scrabble—good game Jim and Kristy (btw, check out their sites if you need a massage or copy editing, respectively)—and also meet face-to-face for the first time with Zeth, my new Cancer Pal and colleague at NYU SCPS CADA. (Seriously, everything at NYU has to have at least three words in its name and an acronym.)

On the career front, I continue to stay busy, which is helpful to keep me from going stir crazy as treatment becomes more and more routine. I’m focusing on my online teaching, which lets me work from home and have a flexible schedule. That’s a huge plus if I have appointments or just want to take a break and rest a bit. My new course, Design For Coders, for new client LearnToProgram.tv, is open in early access for beta testing, and I self-published another, Interactive PDFs with Adobe InDesign: No-Code Digital (click here to get it for free through the end of the month). I was also excited to be honored with a 2013 American Graphic Design Award!

It’s a little hard to believe that I’m over the halfway mark, but I’m looking forward to continuing full speed ahead through the second half, and having a strong finish in November. Thanks to everyone for your continued love, support, and positive thoughts/prayers/vibes/energy. Lotsa love to you all!

Oh, and PS: I ordered the 32GB iPhone 5s in Space Gray. 🙂

From the Forgotten Comes Dinner

As far as groceries go, I am the king of overbuying. I either forget that I already have two jars of dried rosemary, or I get caught up in summer abundance, and have more produce than I can eat before it goes bad. After my last green market haul, a head of broccoli and an eggplant ended up hidden away in my fridge until days later, when I was looking for something else and realized it was use it or loose it time for both. I’m always game for a challenge, so instead of chucking them, I cooked up a surprisingly tasty quick meatless dinner.

What did we do before every recipe, tip, trick, and kitchen disaster fix was online? Not sure how well broccoli and eggplant would compliment each other, I did a search and found plenty of promising results. Next, I wondered if the fresh dill I had—also on death watch—would be a good fit. Google said, “yes.”

I was pretty hungry, so stir-fry seemed to be the fastest and easiest way to go. My usual base is garlic and onion sautéed in a little olive oil, some stock, and salt, pepper and seasonings to taste. I sometimes find though, that my off-the-cuff dishes come out bland. The week before, I made a delicious chicken and broccoli dish that called for thinly sliced lemon, so I decided to add that into the mix.

With my basic plan in place, I got to work on my culinary experiment. As I cooked, I thought the flavors in this dish would need something else to pull them all together, so I added in some ground coriander. I’ve been eating less meat, but making sure to include more plant-based protein to compensate, so I tossed in a can of black beans, which made the stir-fry more hearty, and also thickened it. Side note: I thought I would need a little flour to do this, but the result was too pasty when I added it, and I ended up adding more stock as a fix.

In under an hour, I had a surprisingly good main dish, which served over quinoa and with a side salad, made a very satisfying dinner. Even better, the leftovers gave me two additional meals and a quart for the freezer, where I’ve been storing extra food in case I don’t feel up to cooking, or am hungry and want to eat quickly.

I was pleased for turning veggies that would have otherwise been compost, into several nutritious meals, while at the same time exercising my brain a little, and tapping into my creativity. Not a bad job, if I do say so, myself.

 

Broccoli and Eggplant Stir-Fry with Black Beans and Dill

Prep Time: 15 mins, Cook Time: 25 mins. Yield: about 6 cups.

  • 1 tbsp olive oil
  • 1 large clove garlic, finely chopped
  • 1 small onion, chopped
  • 2 cups diced eggplant
  • 2 cups chopped broccoli, stems peeled if desired
  • 1/2 small to medium lemon, halved lengthwise and thinly sliced crosswise, seeds removed
  • 1 to 1 1/2 cups vegetable stock
  • 1 15 oz. can black beans, rinsed and drained
  • 1 tbsp finely chopped fresh dill
  • 1 tsp dried ground coriander
  • Salt and pepper
  1. Heat the olive oil in a skillet over medium high heat. Add garlic and onion; sauté until golden and tender, about 5 minutes.
  2. Add eggplant and broccoli. Sprinkle with salt; sauté until broccoli is bright green and eggplant starts to soften, about 3 minutes.
  3. Add the lemon and sauté about 2 minutes.
  4. Add about 1/2 cup stock; cook, stirring occasionally, until broccoli is tender, eggplant is soft, and lemon is translucent, about 8 minutes. Add more stock a splash at a time, as needed.
  5. Add beans, dill, coriander, salt and pepper to taste, and about 1/4 cup stock. Cook, stirring occasionally, until beans are heated through, adding more stock as needed, until mixture reaches desired consistency.
  6. Adjust seasonings if desired and remove from heat.
  7. Serve over quinoa, rice, or pasta.

 

The People We Meet

This French short beautifully captures how we can affect each other’s life, and the music is as charming as the illustration and animation. I love that it uses balloons as a symbol of friendship, love, and caring, which I realized is a nice connection to the Light The Night Walk, which also uses them. Just a reminder, I’m walking on Wednesday, September 25th, and you can help or join me.

If you can’t see the video here, just refresh your browser.

FLOATING IN MY MIND from GOBELINS pro on Vimeo.

 

Cancer Pals

Hollis, my friend, colleague, and fellow cancer survivor (yes, I unapologetically will take the liberty of making that prediction) wrote this in a message to me, after learning the news of my diagnosis:

Something that will surprise you (as it did me) is that you may make a circle of cancer pals.”

One of those cancer pals, is Zeth. My friend, CM, who is also a survivor, knows his sister-in-law, and realized that he and I both teach in the same department at NYU, were both diagnosed with the same type of lymphoma, and both have blogs about it. What are the odds?! Zeth included me in a post in his blog, and so I’m returning the favor, with a thanks to him and all my pals, cancer and otherwise.

Second Round Rundown

Joe in Cap and Black Tee

My friend, Carmen, snapped this pic of me, today.

I’m happy to report that I’m two for two! My second round of chemo went very well, with minimal side effects.

Dr. R. increased the dosage this cycle because I did so well after the first one, but I felt no differently for the most part, other than being slightly more tired. This gave me license to indulge in one of my favorite guilty pleasures: the afternoon nap.

I’m also happy to report that my reaction to the Neulasta shot was much less severe. This was expected, because I had less disease. This time, on a scale of one to ten, the pain in the bones of my lower back and legs only got up to a strong one at the most, and two Extra Strength Tylenols once a day took care of it. Last time, it topped off at a strong six, and I took the Tylenol every six hours. That time, the medication wore off at the height of the pain, after only about three and a half hours, leaving me to deal with it until I could take another dose. I also tried a preventative remedy that my Mom passed on—many of you know that she’s also an RN—which seems to have worked, and was recommended through an Oncologist in her medical community: one Claritin the evening before, of, and after the shot. I’m a good patient (if I do say so myself) so I first made sure to clear this with Moira, my fantastic RN/Hematology Nurse Practitioner, before taking anything that hadn’t been prescribed by their office.

The only real issue has been low white blood cell counts: 1500 total with 800 neutrophils (the NIH defines normal as 4,500 to 10,000). As a result, I was put on a five-day course of prophylactic antibiotics. The low counts mean that I feel the fatigue more, too, so I decided not to fight the masses of travelers this Labor Day weekend, and instead have been laying low at home in Brooklyn. These results were expected; in fact, if my counts were good like last time (11,000), Dr. R. would have increased the chemo again for round three.

One thing is certain: my appetite hasn’t been affected. I’m eating like a horse. I met friends for a great brunch at Alchemy, yesterday, and lunch at ‘Snice, today. Before lunch, I stopped at the farmers market on 5th Ave and 4th St, and made a nice haul of fresh produce. Wait, did I really spend $10 on arugula?! No matter, I’ve paid that for a cocktail, and this ten spot went towards part of two bags of local, pesticide-free fruits and veggies to feast on this week. On a related note, I’ve been cooking and eating at home a lot more, which has been very therapeutic and fun. Except for doing the dishes. I don’t ever find washing dishes fun. Especially since, like most NYC apartment dwellers, I don’t have a dishwasher.

The last eight weeks have flown by, but the dust is settling a bit and I’m getting back into a routine. This was my first full week of work since being diagnosed, and it was very productive. I published a new online course of my own at Udemy.com, Interactive PDFs with Adobe InDesign: No-Code Digital, and another, Design for Coders, which I did for my new client learntoprogram.tv, was opened for early access and will go live in about two weeks.

At one-third of the way done, I’m feeling great and hoping the pattern continues for the next four treatments. Thanks for keeping those prayers, thoughts, vibes and all forms of positive energy coming; clearly they’re working!

Lotsa love,

Joseph/Joe

PS: There’s still plenty of time to support my Light The Night Walk on September 25!