Five Rounds of Chemo. What’s It Like?

To Chemo and Back

Click or tap the arrow to play a short video of a day of my last treatment cycle.

I finished my fifth of six rounds of chemo last week, and my streak continues. I’ve done great throughout my treatment, and it’s a little hard to believe that I’ll be done in two weeks, when I complete my sixth and final cycle.

Like anything in life, unless you go through chemotherapy, you form your opinion of it based on what others share about their own experiences. Those tales can often be negative or exaggerated, especially when posted online, where people seem quick to post about the time their sister’s best friend’s mother, lived next door to a woman, whose cousin’s arm turned green and started dripping, after getting that same exact drug!

In fact, for me, it hasn’t been that bad at all, and to share that, I made a short video of my experience getting to and from my treatment on the first day of my last cycle. A shout-out goes to my cousin, Tom Polizzi, for the musical score, an original composition, Beta, performed by his band, Tom Polizzi Trio, live at the Falcon, in my hometown of Marlborough, NY. And, thanks, too, to his dad, my uncle, Charlie, for recording and sharing the audio.

Look for a wrap-up update in a few weeks, and meanwhile, enjoy the video!

 

Goodbye, Mass

This slideshow requires JavaScript.

In August, my chest x-ray showed that the mass in my chest had shrunk from the size of a grapefruit to a golf ball. Last week, I shared the preliminary results of my second PET scan. Today, after repeating the old adage, “a picture is worth a thousand words,” Dr. R. showed me the images you see above. (FYI, despite the fact that my body looks larger in the second scan, I haven’t gained weight, but in fact have lost some.) He’s very pleased with my progress, saying the scan shows, “near complete response after 4 cycles of chemo, and the patient appears to be going into remission.” Best news I’ve heard in months!

Many Big Thanks for Helping Me Light The Night in NYC

This slideshow requires JavaScript.

Mouse over or tap the image to access the controller to stop the slideshow.

On a beautiful evening this past Wednesday, I took part in my first Light The Night Walk, with my teammate Sue and I raising over $5000 together for the Leukemia & Lymphoma Society!

Thanks to the generosity of our families and friends, we’ll help fund therapies and treatment advances for blood cancer patients. Whether you gave $5, $50, or $350, know that you’re saving the lives of people like me who have these diseases.

The walk kicked off at Pier 57, now renamed SuperPier. (On a side note, as a publication designer, I thought it was cool when I read in The New York Times that the name came from a 1952 Popular Mechanics article.)  It took awhile for everyone to get outside, but once we did, the walk along Hudson River Park was a very nice way to spend the evening. Sue and I were members of the Bright Lights Club, having raised over $1000 each. Everyone who raised over $100 was a Champion for Cures, and carried a balloon, which had a light inside it, in one of three colors: white for survivors and patients, red for supporters, and gold in memory of loved ones lost.

The event was very inspirational, and I’m proud that my team surpassed its fundraising goal. If you wanted to give, but didn’t, there’s still plenty of time. Donations will be accepted through the end of the year, and can be made online through my fundraising page, or if you’d prefer to give by check, please click here to email me for the address. In the meantime, I’m sending everyone a big hug of thanks for all your love, support, and generosity!

Midterm Report: Chemo Trifecta

Ten weeks have passed since my Lymphoma adventure started. I continue to do very well, and had a great week on the journey I’ve been taking.

I finished round 3 of chemo last friday, and the side effects were, again, minimal. The most significant has been the fatigue, which an afternoon catnap and a tall half-caf from Starbucks pretty much takes care of. My biggest worry, like last time, was reacting to the Neulasta shot that I get to reduce the risk of infection while my white counts are low, a condition called neutropenia. People often experience bone pain, which I did pretty severely after the first round, but much less so after the second one. This time, it was about the same as round 2, maybe even slightly less so, and was again manageable with a little Tylenol.

I was able to connect in person with some friends for lunch and coffee—nice to see you Linda, Gloria, Joni, Ted, and Bill—some others for dinner and Scrabble—good game Jim and Kristy (btw, check out their sites if you need a massage or copy editing, respectively)—and also meet face-to-face for the first time with Zeth, my new Cancer Pal and colleague at NYU SCPS CADA. (Seriously, everything at NYU has to have at least three words in its name and an acronym.)

On the career front, I continue to stay busy, which is helpful to keep me from going stir crazy as treatment becomes more and more routine. I’m focusing on my online teaching, which lets me work from home and have a flexible schedule. That’s a huge plus if I have appointments or just want to take a break and rest a bit. My new course, Design For Coders, for new client LearnToProgram.tv, is open in early access for beta testing, and I self-published another, Interactive PDFs with Adobe InDesign: No-Code Digital (click here to get it for free through the end of the month). I was also excited to be honored with a 2013 American Graphic Design Award!

It’s a little hard to believe that I’m over the halfway mark, but I’m looking forward to continuing full speed ahead through the second half, and having a strong finish in November. Thanks to everyone for your continued love, support, and positive thoughts/prayers/vibes/energy. Lotsa love to you all!

Oh, and PS: I ordered the 32GB iPhone 5s in Space Gray. 🙂

Over A Thousand Dollars in Three Days

Origami heart made from paper money

Click photo for origami instructions.

In just three short days, I’ve already met and passed my personal fundraising goal for The Leukemia and Lymphoma Society‘s Light The Night Walk! Thanks to the generosity of my friends and family, over a thousand dollars will go to leukemia and lymphoma research, and there’s still plenty of opportunities for you to help and participate.

Since the event is over a month away, I’ve set the bar higher, and set a new personal fundraising goal of $2000. If you’d like to donate, please click to visit my personal fundraising page, and if you’d like to walk with me on September 25 in NYC, click to join Team Joe C.

Every amount, no matter how small, will help fund life-saving research and make a difference. Only have a dollar to give? No problem! Better yet, ask four friends each to match you, and now you’ve got five dollars. What, you say you can each afford to give two dollars? Awesome, now you’ve raised ten dollars that will help fund research for treatments that will wipe out cancer!

For everyone who has donated so far, again, thank you so much, and thanks in advance to everyone who will be giving. One last thing, please be sure to ask your employer if they’ll match your donation and make it count twice!

 

 

After Round One

This is the text of an e-mail, “Joseph Update: 8/4.”

Hello!

Firstly, thanks to everyone for the outpouring of support over the past weeks. Each email, text, call, thought, prayer, vibe, or whatever you’ve done, has helped more than you can know. I’ve done my best to reply to all of them, but apologies if I’ve missed anyone.

In brief: I feel great! Almost bizarrely so. I sailed through the first round of chemo with no real issues. A little achy today, but Tylenol took care of it.

I could not be more impressed with the level of care that I’m getting. All of the providers are friendly, compassionate, top-notch professionals, and not once have I felt like a specimen instead of a person.

Please don’t mistake my optimism for denial. I’m well aware that I may have some rough days. But, I’m not focusing on that. Instead, I’m set on getting through this journey and coming out of it stronger for the experience.

I’ll probably be sending out occasional messages like this one, but have started a blog, Joe’s Lymphoma Adventures (yes, I have a sense of humor about this) and will be posting to that more frequently than emailing. I invite you to follow along at:

www.josephcaserto.com/joeslymphoma

Thank you all, as always. You’re helping me more than you can ever imagine.

Lotsa Love,

Joseph/Joe