I turned 45 last month. Somewhat ironically, my birthday was exactly nine months after I had the biopsy that led to my diagnosis, and that long plus a week after I started chemo. While I can’t say that I was overwhelmed with profound feelings of rebirth, somehow, turning a year older holds a place among the milestones of my recovery, a few of which I reached over the past months.
Last week, I went for my second two-month follow up visit with my Oncologist, Dr. Bruce Raphael, and although I’m still feeling some of the effects of treatment, I got a clean bill of health. I continue to be in remission, and although my blood counts are still low, they’re approaching normal. I’m still feeling some fatigue as my energy is coming back to full strength, so most days I’ll indulge in a nap. Doctor’s orders! I’ll go for a six-month scan in June, which won’t need to be a full PET, but just a chest CT.
Aside from being tired at times, my mood is the biggest thing I’m dealing with. The last few months have been an emotional roller coaster as I came out of treatment and dealt with extremes of happiness and sadness. (I was informed that it’s very normal for people to experience depression and anxiety after finishing chemo, worrying if the cancer will come back, and realizing the intensity of going through a major diagnosis and treatment.) While being in remission is great news, it’s contrasted with family members dealing with cancer and other illness, and grieving the loss of my dear grandma, who passed in March. Although I didn’t find myself emotionally overwhelmed by this mix of events, I had my moments, which I managed with my caregivers, along with making an extra effort to eat and sleep well, and exercise. I’ve been walking at least 30 minutes a day, which is important physically, clears my head, and keeps anxiety at bay.
Being self-employed, I’ve self-approved a medical leave, and because of savings and insurance, I’m fine financially. I pay for long term disability coverage through Freelancers Union, where I also get my health coverage, and can collect benefits until I’m cleared by my physician to go back to work.
Aside from the medical milestone of another two-month checkup, this spring, I attended two events that each had a special part of my revery: the ADIM Conference, and the SPD Gala. At both, I was reunited with many friends who I hadn’t seen since before my diagnosis, but who encouraged me through it, like Hollis (my cancer pal), Jake, Rocky, Shawn, Ina, Jason (thanks for the prayers, they helped!), James, Andrew, Bob “The Man” (my fellow NYU Langone patient alum), Victor, Neil, Nancy, and so many more whose support meant, and stll means, so much to me on this journey. There were friends, too, who didn’t know of my adventures—or who I didn’t know did—but once they heard of them, offered kind words and shared their own stories with me, like Russell, Mary K. and Will, Jeremy, Victoria, Nancy, and Trevett. There are so many others who I haven’t named, but who I thank, nonetheless.
My next big milestone is my one-year anniversary in July, and every year I go without recurring—I have an 80-81% chance that I won’t, and I always throw in that extra 1%—the less probable it is that it will happen. In fact, Dr. R. told me that if I haven’t recurred in two years, I’m most likely not going to. That cuts my race in half, since if I make it to four years, I’ll be cured. As always, thanks to you all for your friendship, love, and support along the way. It continues to be a source of strength and inspiration.
Lotsa love,
Joseph/Joe
We love you, Uncle/Cousin Joseph!!
I am so proud if you! You share your mother’s grace in handling this medical challenge. Your level head and informed decisions have served you so well. I hope you are super proud of yourself as well. You are the only one who can create the physical, emotional and spiritual environment for well-being and you have done so, and beautifully! Here is to the next year of healing! Love you so! Aunt Mic
Happy Birthday, Joe —–()—@
Go Joe! Wishing you all the best. You look terrific!
Dear Joe, you are inspiring! You have dealt with so much, with such fortitude and grace. Happy birthday and many more!
Joseph, your spirit is inspiring. Hope to see you soon. Love, ‘Auntie’ Clee
Congrats on everything Joe. SO GLAD to hear. 🙂 Was really good seeing you in Boulder.
Thanks the update, Joe. So very glad things are going this well. Sorry the mood thing is troubling, but appreciate you’ve had and continue to get support around that. Know that you have mine as well. We should set up another phone chat. I haven’t had cancer, by man, I know about depression and anxiety related to medical situations that are mostly beyond my control. (Nothing mysterious, but daunting nonetheless.) SO very glad you’re taking the time you need.
So very happy to hear of your Milestones!! Keep counting those blessings my friend. Xo
Joe, you look great! So good to hear you are doing well, despite a few, to be expected, dips in spirit. Miss you. Hope to connect this spring. be well!
You are an inspiration, Joe. Your following of individuals that love and support you is a reflection of what you provide for all. Enjoy 45, you wear it well. Cheers to all your days passed and the many more to come!
You did a great job going through this with grace and strength. We are all behind you and will continue to be. Use all of the people in your life as pillars to maintain a strong foundation so you can continue to on the road to recovery and have the strength to support the ones you love who are still challenged with health issues. Keep up the good work, you are an example for us all.XOXO
Joe, you are my hero. I know the road was long and difficult but your spirit, will and amazing attitude are so inspiring.
Happy belated birthday! And many many more in future. You look so happy and well and are an inspiration to us, thank you!